Andrew McFadyen

Who is Andrew McFadyen?

Andrew McFadyen is the Executive Director of The Isaac Foundation, a non-profit organization created to fund viable and innovative research projects that aim to find a cure for MPS VI, a rare and progressive disease of which his eldest son, Isaac, was diagnosed. The Isaac Foundation has funded numerous international research grants over the past six years, totalling over 1/2 million dollars. Isaac, the McFadyens, and The Isaac Foundation, have been featured in articles in newspapers throughout the United States and Canada, includingThe Globe and Mail, The Independent, Kingston Life Magazine, Sun Media, and The Community Press. Two projects, in particular, are showing incredibly promising results and will lead to innovative new ways to treat the disease. One project is reversing all signs of bone and joint disease in the lab setting, and the second promising project is set to begin human clinical trials in early 2015.

Andrew has led numerous advocacy efforts throughout North America and has succeeded in having government decisions that have denied treatment for children reversed, reversals that helped provide these children the hope of a positive and healthy future.